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When we donate our funds we ask the doctors in the
children's hospitals,
"What will help the kids in their care
the most "
We are proud to have funded the positions
below.

The
Oncology unit at Westmead, provides advanced training for
young paediatricians
in the field of childhood cancer treatment and research, by
way of an externally funded Oncology Fellowship for 12
months, extendable to 24 months by negotiation. This is an
invaluable source of training for the Fellow as it exposes
the Fellow to a broad spectrum of childhood cancers and
their management under the supervision of the departments
consultants and provides excellent opportunities for the
Oncology Fellow to develop his or her competency as a young
specialist.
The Oncology Fellow supervises
three medical house staff and is responsible for the day to
day medical care of all the departments in-patients, and
assists in the day to day management of the out-patients in
the Oncology Treatment Centre, involving close liaison with
medical house staff, nursing staff and especially families.
Oncology is a very specialised
area and without this position, the patients would be looked
after by hospital registrars who rotate departments every 3
months.
Having an Oncology Fellow
means that patients receive a greater standard of care and
expertise through:
(1) Continuity of Care - the
Oncology Fellow gets to know the patients and their
families, building trust with them because the child is
cared for by the same doctor throughout the course of their
treatment and
(2) The Oncology Fellow passes
on their knowledge to junior medical staff and oncology
nursing staff and is involved in clinical research.
The Oncology Fellow is
indispensable in the care of children with cancer.
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Rhonda Rytmeister |
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The
Oncology Unit at Westmead, uses donated funds to employ a full-time psychologist in the department who is an
invaluable member of our allied health support team.
The Oncology psychologist is
freely available to all patients and their families should
they need to talk to someone. The psychologist treats the
'family' as a unit and not just the individual child. The
role of the Psychologist is varied and includes the
following:
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Provides counselling
and support to children and families who have been newly
diagnosed with cancer. Helps them deal with stress
management and anxiety. Families can be particularly
under strain if one of the parents needs to give up
their job to care for the sick child. |
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Provides therapy for
parents to deal with anxiety and depression. |
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Helps parents with
behavioural management of their child and children with
pain management. |
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Uses CBT (cognitive
behaviour therapies) to help children cope with painful
procedures, (eg teaches them to push the thought of pain
to the back of their mind and train them to focus on
being healthy again in the future). |
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Liases with schools and
helps facilitate the child's entry back into a normal
school life. |
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Provides home visits to
grieving families (bereavement support) |
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Conducts neuro-psychological
assessments |
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Runs weekly discussion
groups for parents this is a place where they can talk
freely and gain support from each other |
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Helps children
(especially teenagers) cope with feeling 'left out' of
normal social life |
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Helps facilitate
communication between child and parent (eg often a child
will know that they are dying, yet the parents don't
know the child knows) |
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Aids communication
between parent and doctor |
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Helps kids and families
who are coming off treatment (often parents think they
are meant to be happy as their child is finishing
treatment yet they often have fear and anxiety that the
cancer will come back) |
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Explores spiritual issues
with the families. Often the families start to think
about deeper issues (is there a higher purpose for this,
am I being punished etc) and often turn to the
psychologist just to explore these thoughts |
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The Psychologist is
indispensable in the support that is provided to patients
and their families.
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Advances
in design of medical equipment and surgical techniques now
permit almost all children receiving treatment for cancer to
have a permanent and comfortable in- dwelling tube inserted
into the blood- stream known as a central venous line (CVL)
The availability of the CVL means that blood tests, required
often on a daily basis for blood counts and other essential
monitoring during treatment, can be collected painlessly by
sampling the CVL rather than by painful finger pricks or venipunctures.
This position is fully
supported by Westmead's, Haematology and Pathology
departments. A registered nurse is available each weekday
morning to access the CVLs of all Oncology patients
requiring blood tests for their routine treatment, removing
the need for hundreds of painful finger pricks each week.
By providing telephone
liaison and treatment planning with families each afternoon,
the CVL nurse is also a valuable component of the Oncology
Unit's participation in clinical trials supervised by the
prestigious U.S.-based Clinical Oncology Group, comprising
hundreds of similar oncology units through the United States
and other countries. The Oncology Unit at Westmead has been
a member of C.O.G. since 2000. Participation in C.O.G.
ensures our patients have access to the most up-to-date and
reliable treatments for childhood cancer.
Each
morning, the CVL/COG Nurse draws
blood via central lines from 20-30 outpatients
in the Haematology Department.
In the afternoons the CVL/COG Nurse conducts essential case management and liaison
with families for oncology children enrolled on Clinical
Oncology Group trials to help ensure compliance with
protocols/treatment programs.
The benefits to the
children is painless blood collection, in contrast to the
countless finger-pricks they currently endure, as well as
advances in treatments obtained through Clinical Oncology
Group trials.
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Most
of the remarkable advances in the improved cure rate for
childhood cancer have occurred because of the advent of
multi-centre, and now international, clinical trials of
treatment. This allows the current most effective therapy
for a particular childhood cancer to be compared to a
slightly different experimental therapy which may prove even
more effective. Successful participation in such trials
requires assiduous recording of data, and reporting of that
data to the national or international centres that are
supervising each treatment trial.
Many of our patients are
entered on national or international trials of therapy, to
enable outcomes of treatment to be compared and continuously
improved.
The treatment of childhood
cancer is complex, and requires administration of
complicated regimes of cancer-fighting drugs known as
chemotherapy for periods of up to two years. As many as nine
different drugs may be involved. In order for the treatment
to have the best chance of succeeding, it must be
administered accurately, and the results recorded in
department records for later analysis.
The Oncology Unit currently
employs three full-time Clinical Research Associates to
provide the required data management. One of these staff
members is paid for by government funds allocated to the
hospital's budget. The salary for the other two positions
are met by donated funds,
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Most
routine treatment of childhood cancer is administered on an
outpatient basis (no overnight stay). This means Westmead’s
young patients can return home and get back to school soon
after treatment is started. It also means that children
spend less time in hospital and this helps improve the
morale of both patient and family.
Treatment
however, often
requires two to three visits to the department each week for
tests and injections of planned treatment. This makes the
Oncology Treatment Centre one of the busiest areas in the
entire hospital as between 20-30 patients arrive at the
Oncology Treatment Centre each weekday for routine
treatment.
The oncology unit uses
donated funds to employ additional medical practitioners to
work in the Oncology Treatment Centre. They provide
essential hands-on care to children requiring treatment (for
example venipunctures, lumbar punctures, chemotherapy
injections). They also assess the patients to ensure they
are well enough to receive the next planned part of
treatment. They make a significant contribution to reducing
unpleasant waiting times and helping our patients get on
their way home quickly again. They also become very well
known and trusted by the patients and their families and
form an invaluable component of our support program. BACK

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Shannon Tracey, position 1 |

Melanie Boulton, position 2
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The
Department of Social Work requested and received funding,
for two new social work positions in the oncology unit.
The additional positions were required to address the
growing need for support services for families with children
with cancer. These positions are providing crisis
support to parents and children at the time of diagnosis or
relapse in the child's condition and extend services to
siblings and other family members.
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